Over the past five decades, survival rates for children, adolescents, and young adult cancer survivors (CAYACS) have significantly improved, primarily due to advancements in cancer diagnosis and treatment. However, there remains limited understanding of the long-term effects of cancer and its treatment on those diagnosed at an early age.
To address this, the CAYACS Program established a retrospective cohort of BC cancer survivors diagnosed between ages 0–39 from 1970 to 2020. This cohort, identified from the BC Cancer Registry, is linked with treatment data and various administrative databases to enable long-term survivor research. A frequently matched comparison group was selected from the provincial health insurance registry to mirror the distribution of the survivor cohort.
By integrating data on treatment, healthcare utilization, perinatal registry, education, and income, the CAYACS Program provides a comprehensive view of CAYA survivors’ long-term outcomes and quality of life. Additionally, it examines healthcare utilization, such as physician visits, hospital admissions, mental healthcare, and pharmaceutical use.
Principal Investigator: Rod Rassekh, BC Children’s Hospital; Rachel Altman, Simon Fraser University
Principal Investigator: Stuart Peacock, BC Cancer, Simon Fraser University
Principal Investigator: Stuart Peacock, BC Cancer, Simon Fraser University
Principal Investigator: Helen McTaggart-Cowan, BC Cancer, Simon Fraser University
Principal Investigators: Mary De Vera, University of British Columbia; Helen McTaggart-Cowan, BC Cancer and Simon Fraser University
Principal Investigator: Stuart Peacock, BC Cancer, Simon Fraser University
Principal Investigator: Meera Rayar, BC Children’s Hospital, University of British Columbia